My boy

Brendan is having a rough go of it lately. He is averaging 2-3 major panic attacks per day and is having several depressive episodes a day. His panic attack was so extreme today he had to leave his beloved job early. We are hoping to get in to see his neuropsych sooner than later.

Just asking for some extra prayers my boy's way.

3 weeks post-op

Áine Clare is moving along in her recovery.
She still sleeps a lot and is pretty weak, but when she's awake she is a happy girl. She is sitting up okay before gracefully falling to the side when she tires. Walking is a challenge, but she keeps trying!

A Spontaneous Move

Ciara went with Mom today for Mom's haircut and some errands. Instead, Ciara got the urge to cut off her hair and it's so cute! BIG change for her! I know she will rock it with her collection of fascinators and flowers.

Look Who's Home

Miss Áine Clare was discharged first thing this morning.
Happy girl!

Thank you for all the support and prayers during Áine's hospitalization.

On to recovery!

Day 14 - Club Med UCLA

No oxygen. Yay!
No catheter. Yay!
Better sodium levels. Yay!
At this morning's PICU rounds, the team felt that Áine could be discharged in the next day or two depending on how she handles the sodium issue on her own.

Of course she wants nothing to do with her formula, but Momma won't let that keep us here!
Who doesn't eat better once home?

Day 13 - Club Med UCLA

Áine is feeling better today!
Oxygen came off this afternoon. Yay!
Catheter still in. Boo!
Sodium still low. Boo!

Day 12 - Club Med UCLA

Áine is having continuing issues with her kidneys and her sodium levels. Some progress made over the weekend and then a few steps back today.

She remains on a two week course of double antibiotics and had a PICC line put in last week which she will go home with should we ever get out of here.

She remains on oxygen and has a catheter and is only allowed six ounces of formula per shift. She was quite giggly for Dad over the weekend, but is exceptionally tired from a serious lack of sleep.

Neurosurgery and neurology are ready to discharge her any time. We just need to get a handle on the metabolic situation.

Áine remains her cute, sweet self, but it would be so nice to be home.