It has been confirmed through the growth stimulation test at the end of December and her most recent MRI, that Miss Áine Clare has Growth Hormone Deficiency. She will start daily injections of Norditropin in the next 2-3 weeks pending insurance approval. She will be seen again by the endocrinologist in mid-May. The results of the injections should be an increase in bone length and muscle strength and a decrease in fatty tissue. Side effects of the medication are primarily headaches and joint pain.
I will post her start date here on the blog.
On a side note, she dropped her drawers in school on Friday during circle time. Always good to mix things up, isn't it?
Saturday, January 30, 2010
Tuesday, January 05, 2010
The end of a wonderful day...
Today was the first time Áine seemed to understand what her birthday is all about. This is a milestone!
She spent the day at school laughing and giggling and having everyone sing "Happy Birthday" to her from the ladies in the front office to the cafeteria workers who put her in the middle of the room and had the students sing to her. She enjoyed opening her presents and actually playing with them. It has been a good, good day. One for the memory book...
The Angels Danced the Day You Were Born
HAPPY BIRTHDAY, ÁINE CLARE!
Nine years ago at 9:35am the world met an ethereal 5 pound 13 ounce bundle of wonderfulness with curly red hair and luminous green eyes. Who knew then what was in store for this sweet baby girl?
What a gift she is. She has singularly taught me what it means to persevere with grace and a happy heart. I can ask for nothing more.
Áine is an angel on earth.
The Angels Danced The Day You Were Born - Part 2
Big brother and big sister approved a second birthday blog posting for their baby sister since she's so cute. (Their words, not mine. Well, as least the words of the spokesperson of the group. Not that I disagree.)
Friday, January 01, 2010
Thursday, December 31, 2009
Oíche Chinn Bhliana 2009 - New Year's Eve 2009
Think where man’s glory most begins and ends, and say my glory was I had such friends. – William Butler Yeats
It’s that time of year for reflection I suppose. Like most, this year has been one of challenge and triumph, lows and highs, and even some even keel bits thrown in for good measure. It’s a typical 12 months in that way. Life wouldn’t be life without the ride, the journey.
My brief message on this last day of 2009 is one of thanks. It is with a grateful heart that I thank those who stuck with us during this year and those who checked in with us when we could not check in with you.
Friendship is always a sweet responsibility, never an opportunity. -- Kahlil Gibran
I have long believed that people come in and out of our lives for a reason. Some stays are brief. Some are lengthy. Some are sporadic. But each relationship changes us, affects us, leaves an imprint on us. It’s up to us to decide whether to look upon that imprint as a positive one or a negative one.
I thank my friends – what a cherished word that is! – for your encouragement, support, laughter, empathy, compassion, and caring.
May 2010 be a year that brings peace to your heart, your body, and your spirit.
When we honestly ask ourselves which person in our lives means the most to us, we often find that it is those who, instead of giving much advice, solutions, or cures, have chosen rather to share our pain and touch our wounds with a gentle and tender hand. – Henri Nouwen
It’s that time of year for reflection I suppose. Like most, this year has been one of challenge and triumph, lows and highs, and even some even keel bits thrown in for good measure. It’s a typical 12 months in that way. Life wouldn’t be life without the ride, the journey.
My brief message on this last day of 2009 is one of thanks. It is with a grateful heart that I thank those who stuck with us during this year and those who checked in with us when we could not check in with you.
Friendship is always a sweet responsibility, never an opportunity. -- Kahlil Gibran
I have long believed that people come in and out of our lives for a reason. Some stays are brief. Some are lengthy. Some are sporadic. But each relationship changes us, affects us, leaves an imprint on us. It’s up to us to decide whether to look upon that imprint as a positive one or a negative one.
I thank my friends – what a cherished word that is! – for your encouragement, support, laughter, empathy, compassion, and caring.
May 2010 be a year that brings peace to your heart, your body, and your spirit.
When we honestly ask ourselves which person in our lives means the most to us, we often find that it is those who, instead of giving much advice, solutions, or cures, have chosen rather to share our pain and touch our wounds with a gentle and tender hand. – Henri Nouwen
Monday, December 28, 2009
Growth Stim Test
Today Miss Áine Clare and I left for UCLA at 6am and returned home at 4pm. Her growth stimulation test was successful. The nurses used the vein Momma suggested and the flow was good. They were able to take two vials of blood every thirty minutes for a total of 8 times. Midway through the procedure she received a 30 minute IV of Argenine which made her not feel very good. And post blood draws she got plenty of IV fluids and her bottle. The results will allegedly be ready in two weeks, but I figure we won't hear anything until our appointment with the endocrinologist on January 28th.
Vein successfully located. Off to a good start.
First blood pressure lowering med taking effect.
A rarity -- Áine sleeping somewhere other than her beloved bed.
So not a happy girl!
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