Áine Update

Áine has been suffering with pediatric insomnia since mid-March which translates to about 90 minutes of sleep per day. She had been doing wonderfully during that time and it hadn't affected her. However, over the past few days her "sleep" pattern has altered so that she can fall asleep at night but awakens every 30 minutes. It has been determined by her neurologist based on my observation and an event at school on Tuesday that she is experiencing yet another type of seizure. She is not very alert and has lost much of her affect and struggles with maintaining her balance, etc. Her neuro team is working on getting her a bed at UCLA. I will update here when I have more information.

She was playing on Monday afternoon and just fell over asleep which lasted all of 3 minutes.

This was taken this morning after getting ready for school. Big brother is comforting her :o)