It has been confirmed through the growth stimulation test at the end of December and her most recent MRI, that Miss Áine Clare has Growth Hormone Deficiency. She will start daily injections of Norditropin in the next 2-3 weeks pending insurance approval. She will be seen again by the endocrinologist in mid-May. The results of the injections should be an increase in bone length and muscle strength and a decrease in fatty tissue. Side effects of the medication are primarily headaches and joint pain.
I will post her start date here on the blog.
On a side note, she dropped her drawers in school on Friday during circle time. Always good to mix things up, isn't it?
Saturday, January 30, 2010
Tuesday, January 05, 2010
The end of a wonderful day...
Today was the first time Áine seemed to understand what her birthday is all about. This is a milestone!
She spent the day at school laughing and giggling and having everyone sing "Happy Birthday" to her from the ladies in the front office to the cafeteria workers who put her in the middle of the room and had the students sing to her. She enjoyed opening her presents and actually playing with them. It has been a good, good day. One for the memory book...
The Angels Danced the Day You Were Born
HAPPY BIRTHDAY, ÁINE CLARE!
Nine years ago at 9:35am the world met an ethereal 5 pound 13 ounce bundle of wonderfulness with curly red hair and luminous green eyes. Who knew then what was in store for this sweet baby girl?
What a gift she is. She has singularly taught me what it means to persevere with grace and a happy heart. I can ask for nothing more.
Áine is an angel on earth.
The Angels Danced The Day You Were Born - Part 2
Big brother and big sister approved a second birthday blog posting for their baby sister since she's so cute. (Their words, not mine. Well, as least the words of the spokesperson of the group. Not that I disagree.)
Friday, January 01, 2010
Subscribe to:
Posts (Atom)
