Day 13 - Club Med UCLA

Áine is feeling better today!
Oxygen came off this afternoon. Yay!
Catheter still in. Boo!
Sodium still low. Boo!

Day 12 - Club Med UCLA

Áine is having continuing issues with her kidneys and her sodium levels. Some progress made over the weekend and then a few steps back today.

She remains on a two week course of double antibiotics and had a PICC line put in last week which she will go home with should we ever get out of here.

She remains on oxygen and has a catheter and is only allowed six ounces of formula per shift. She was quite giggly for Dad over the weekend, but is exceptionally tired from a serious lack of sleep.

Neurosurgery and neurology are ready to discharge her any time. We just need to get a handle on the metabolic situation.

Áine remains her cute, sweet self, but it would be so nice to be home.

Áine Clare

"Let the little children come to me, and do not hinder them,
for the kingdom of heaven belongs to such as these."

Áine and her "D"

Daddy love.

We have a...

SMILE!

Eyes open!

Both eyes are open today... yay!
Áine greeted Momma by grabbing my finger to do "ears, nose, cheek..."
Still no smiles, but she is making good progress according to her neurosurgeon.
Still dealing with UTI, pneumonia, and chemical meningitis, but is being treated for all of them.

Loving UCLA, loving our team, loving our sweet baby girl.
And a shout out to brother and sister at home with an equally wonderful team!

New Baby Cousin/Niece

Ciara with new cousin, Emilia Adriana.

Devoted Sister

January 20, 2012

Ciara dedicated the ballad a cappella version of The Beatles' "I Want To Hold Your Hand" to her little sister and was thrilled by the crowd's appreciative response.

Ciara, you rock!

Surgery Day

January 19, 2012
Re-do Right Hemispherectomy
UCLA


Miss Áine Clare prior to her surgery.

Yes, it's the right side.

Look who's 11!

Unreal.
Our baby girl, Áine Clare, turns 11 years old at 9:35am today.
How blessed we are.

Children are the hands by which we take hold of heaven. ~ Henry Ward Beecher

One thing down...

Thanks to some WONDERFUL ladies in Áine's life, providing 4 units of blood for her upcoming surgery can be crossed off our "To Do List". Yay!

I awoke this morning with devout thanksgiving for my friends, the old and the new.

~Ralph Waldo Emerson