Friday, December 30, 2011

Just 'cause she's so stinking cute!

The results of an impromptu photo shoot while waiting at the doctor's office.







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Tuesday, December 20, 2011

Sally Brown and Santa

Last Friday, Áine Clare was Sally Brown in her classroom's presentation of "A Charlie Brown Christmas", hence the pink shirt instead of the red one I sent her to school in. She played her part beautifully.

The festivities were capped off with a visit with Santa Claus.
Santa was very taken with our red-haired girl.



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Monday, December 05, 2011

Áine Clare update

Miss Áine Clare will be having revision brain surgery on Thursday, January 19, 2012 at UCLA. Dr. Mathern will be her surgeon again.

Her surgeon will remove a portion of the brain on the right hemisphere close to the brain stem. The surgery has a 50/50 chance of controlling her seizures. The wonderful news is that barring any complications, she will not lose any present skill level.

In the mean time, she will be weaned off one of her anti-convulsant medications and another one will take its place.

I will post more information as I know more and as we get closer to her surgery date.

Better late than never!


Brendan turned 19 on Saturday, December 3rd. Happy birthday, Brendan! We were in the throes of a massive power outage and just in time for my boy's celebration the lights came on. Yay! We enjoyed pizza and "sawad" and cupcakes and a rousing game of "5 Second Rule" with Becky.

Brendan is having a good year at school and is now part of the transition program -- post high school. He works at JoAnn's Fabrics and loves it! It is reported that he is a hard worker and follows directions with a smile on his face. Yay, Brendan! We are so proud of you.